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This blog is to take ALL the mystery out of Orbital MALT Lymphoma and to share my experiences with others diagnosed with the same cancer.

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Monday, January 16, 2012

Last Radiation Treatment



Today was my last radiation treatment for Orbital MALT Lymphoma. The doctor quoted a time span for the radiation to leave my body, 3 weeks. I'm looking forward to stop wearing sunglasses wherever there are fluorescent or bright lights, being able to enjoy the sunny days outside, wearing make-up and obtaining my energy level again. 

In the beginning, silence in dealing with cancer was the best alternative and then, my daughter and closest friends encouraged me to share my experience with others. To be honest, I was petrified of having OML, worried that people would maliciously gossip and I'd walk into a store, meet an individual and discover horrific rumors circulating around town – already one foot in the grave, hairless, blind in one eye - you name it. Ha-ha. With the help of loving friends and family, I decided to swallow my pride. 

One certain friend, KBL, was the main inspiration. Sending wonderful personal prayers, her faith in God, truly touched my heart. She is the most beautiful individual – inside and out – and her faith inspired me to reach out to others. Reaching out to friends was the best decision. Thanks to all of my wonderful friends for being there for me!  Suffering with a small group isn't the answer. Sharing with others has been the best solution to seeing me through these uncertain times. 

Researching on the internet was the main factor on creating my blog for OML. Frightening information about the disease sent me into frenzy. Was it true or false? The best way to arrive with the truth was to write about my experience. Being an asthmatic, claustrophobic and vain woman relating her experience with radiation treatments had the initial drama of the posts I had read on the internet.  I wanted to write truthfully about the mask, the radiation treatments, and debunk misinformation. I sincerely hope that the blog will help other OML patients on their journey to healing, giving faith and encouragement.

Wagging the mask through the medical center and to the parking garage was an uplifting walk. It was mine to do with as I please. The radiation team laughed when I asked about making it a piƱata. Hanging it from a tree and using a big stick seemed a perfectly normal reaction to a claustrophobic and asthmatic individual who has not gotten warm and cuddly with the snap down mask. Found out, it's next to impossible to shatter the darn thing into smithereens so….decorating is still on the agenda. Ha-ha. Stay tuned for the created mask – scary or sweet – who knows?

For those with OML: Recovering from radiation treatments, around my left eye, it looks as if it has sunburned and there is a feeling of a dull ache.  The information from the doctor: the redness will worsen during the healing period and itch. It's important not to rub or scratch the eye. Cataracts are on the agenda. No hot or cold packs for the eye so sometimes I cheat with a quick swipe of very warm water on my face during the shower. (I'll be so glad to hold my face under the shower and let the water flow.) Absolutely NO make-up applied. Didn't realize metals are in make-up and the chance of melanoma is increased. Sunglasses worn outside and during shopping since the eye needs added protection. The skin is dry (all over body) and the radiation team handed out samples with coupons and recommended a lotion, Aquaphor.
The Vain Thing: The first thing I do each morning is to look in the mirror to check to see if my bangs and eyelashes are still intact. So far, the bangs have thinned a bit but my lashes are still batting. I'll definitely blog if upon waking one morning my bangs, splotches of hair or lashes disappear. Ha-ha.

In six weeks, a scheduled MRI scan to guarantee I'm cancer-free and I know the waiting for the end results will be the hardest. I'll fill my days with a little primping, enjoying the sunshine, pruning roses and catching up on gardening. Time will go by quickly if I stop to smell the roses and remember the love and support that's in place for my recovery. I'm so thankful for my supportive hubby, friends and family. My life is sweeter and richer because of 'you.'  

Since today was my last day of treatment, the tradition at the Methodist Hospital is to take a photo and read out loud to those in the waiting area an affirmation written on a plaque that's hanging on a wall, and then ring the bell three times. After a round of applause, hoots and congratulations for completing treatments, and with the mask in tow, I whispered a prayer for those still fighting the battle of cancer.  Walking out of the double doors, I looked up at my hubby, smiling, "Ladies and gentlemen! May I have your attention, please! Brenda, has now left the building."

On my doorstep, a gorgeous arrangement of lilies and freesias welcomed me home. My thoughtful and sweet daughter with these loving words of encouragement touched my heart. 'Congratulations on your last treatment! Your bravery and strength has amazed me. You are truly an inspiration to me and I am so lucky to be able to call you my mother.'  In an adaption to Romans 8:31, if my family and friends are for me, who can be against me?  I am ONE LUCKY gal!



Self-Pity by D H Lawrence
 I never saw a wild thing
sorry for itself.
A small bird will drop frozen dead from a bough
without ever having felt sorry for itself.

1 comment:

  1. Brenda, What I'm feeling right now goes beyond words: RELIEF (treatments are over), PRIDE (you have been sooo brave), INSPIRED (not knowing if I would go thru treatments should I be diagnosed), AMAZED (that you have the courage to share very personal feelings)and GRATEFUL (that God can change something bad and use it for good) These are some of the things I'm feeling and I've never met you yet feel like we're friends. May God continue to Bless you and your family with Healing and Love. Roxie

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